Endo Battle Story: Heather Sutton

endometriosis stories


I had horrendous periods as a teenager.

I did not know it wasn’t suppose to be so awful. Just kind of thought that’s how it was supposed to be. For days on end, I would be in bed, curled up into a ball. Midol would barely take the edge off.

I met my husband at 17, gave birth to our daughter a year later. About 6 months after she was born, I really started having issues. On one of my worst nights, I ended up in the ER, puking, and in so much pain I almost blacked out.

Doctor came in, diagnosed me with a ruptured ovarian cyst, and sent me home.

To help manage my periods, since they were so irregular, I was put on birth control. It did actually help with the severity of them.

Something Wasn’t Right

Fast forward 2 years and my son is born.

When he was about a year old, I started noticing more abdominal pain. I would experience spontaneous bleeding between periods and my abdomen hurt so much that all I wanted was to lay in bed. Even just my son, a whole 20 lbs, laying his head on my belly was so painful.

I knew that something was not right.

Back to the GYN I went and they switch my birth control to see if it would help. It did, sort of. The new birth control would take away a little of the bleeding but would cause pain during intimacy.

Not cool.

More Experiments

So back to the doctor for more experiments.

Another year passes, and we switch to something that will give me only 4 periods a year! Well, it was supposed to anyway. I was on that one for a while, but still having pain and now during intimate times, I’m not just having pain, I’m bleeding.

Back to the doctor again for a yearly, and another new pill. Literally. They say “try this pill and come back in 3 months.”

Three months later I go back, get a pelvic exam, and my doctor is 99% sure I have endometriosis and wants to do exploratory surgery to find out for sure and remove whatever is found.

So, I go for surgery, Doc was right, and I end up having 10 areas removed, one of which was fused to my stomach, which I was told is dangerous.

I had a rough recovery, but felt great for about 11 months afterwards. Then one day I notice my stomach was a little tender. Through the next year I noticed more and more pain, and then all of a sudden, all my old symptoms are back.

Only now, this time around, I’ve been diagnosed with multiple sclerosis with 4 MRIs, and that just adds more stress on top of everything else.

Continued Battle

To this day I’m still changing pills trying to see what will help the most, and have even contemplated a hysterectomy since my husband and I have decided no more kids.

We feel very lucky to have the ones we do though, because infertility is a big issue with endometriosis.

To top that off, the medication I’m currently taking discourages pregnancy. So I will sit back and see how these next 2 months go, and then I get to go back to the doctor for my next round of options.

I really wish there was a cure for this, not only for myself, but for all the women out there who suffer far worse than I do. And I applaud you all for being so strong even on days when all you want to do is give up!


Do you have endometriosis?

Please consider sharing your endometriosis battle story. The more stories we can share, the more awareness we can raise, and the more quickly another woman might find a diagnosis.

Share your story here >>